Infections and Inequalities, Paul
Farmer, Berkeley: University of California Press,
2001.
Dying for Growth: Global Inequality and
the Health of the Poor, Jim Yong Kim, et al., eds.,
Monroe, Maine: Common Courage Press, 2000.
Review
essay by Neil Arya
Throughout the last two
decades, the US government and transnational
corporations have worked more or less in concert with
the World Bank, the International Monetary Fund and the
World Trade Organization to promote a neo-liberal agenda
of deregulation, privatization and reduction in the role
of government. Two recent books assess the results of
this set of policies from a health perspective and their
conclusions are damning.
Paul Farmer’s Infections
and Inequalities reflects on his experiences since 1984
as a physician at Clinique Bon Sauveur in rural Haiti,
dealing primarily with victims of TB and AIDS. In a
collection of ten essays, half of which were previously
published, Farmer relates personal stories in the voice
of the marginalized victims and then adds his own
analysis.
The authors in Dying for
Growth include political economists, anthropologists,
epidemiologists and historians, but the issues they
address are prompted by the concerns of doctors and
patients. Incorporating the strengths of the personal
accounts found in Infections and Inequalities, Dying for
Growth adds a macroeconomic perspective of the roles
transnational corporations and international financial
institutions play in the health of the world’s poorest
and sickest. Double
standard A palpable anger permeates
each paragraph of Farmer’s book and is quite
understandable: most of the patients he writes about are
now dead of preventable illness.
Farmer lays much of the
blame for this tragedy on the double standard that is
applied to the health and lives of people in less
industrialized countries. Cost-effectiveness is often
used as a justification to fund only low-cost,
“appropriate technology” interventions for HIV and AIDS.
Farmer believes that this argument is unethical and
dishonest. Farmer’s Third World colleagues want
hospitals, not preventive programs. Instead of needs
assessments and studies, they want access to new
advances in pharmacotherapy.
He concurs with New England
Journal of Medicine editor Marcia Angell that the use of
a placebo control group in an African study of HIV
treatment is unethical when the prohibitively expensive
antiretroviral AZT is already known to be effective in
reducing perinatal transmission of the virus. It is
reminiscent of the notorious Tuskegee trials in the
early part of the 20th century when African-Americans
with syphilis were left untreated in order to observe
the “natural history” of the disease.
Farmer finds it ironic that
those who promote the HIV study say that they could not
impose American standards of care on African people, yet
they often have no compunction supporting governments
and institutions that impose structural adjustments,
which have a devastating effect on the poor.
Yet the strength of
Infections and Inequalities is not found just in this
provocative analysis but in its human stories. For me,
these stories read like the tragic novels of Thomas
Hardy, where the heroine proceeds to an inevitable – but
seemingly avoidable – conclusion.
The system thwarts the
valiant efforts of people to overcome obstacles, while
simultaneously blaming the victim. Benedicta, a poor TB
victim in Peru, is given sanctimonious advice by doctors
not to cough on others, to avoid crowded situations, to
find clean water and to attend clinics when she cannot
even afford bus fare, let alone drug costs. When she
finally scrapes together money for treatment but fails
to get better, she is considered non-compliant and
difficult. The fault instead was systemic. Even though
her brother was known to have died of a drug-resistant
strain of TB, Benedicta’s doctors persisted with the
ineffective, standard treatment.
When all treatment seems
futile, with his patients dying around him like flies,
and when little seems likely to change at the global
level, what allows Farmer to go on each day? The answer
may be found in the response of one of his patients:
“Doctor, when all around you, liars are the only cocks
crowing, telling the truth is a
victory.” Economic
causes The editors of Dying For Growth
agree with World Bank rhetoric that the health situation
of the poor would be worse without economic growth, but
contend that current strategies designed to ameliorate
their situation have hindered more than
helped.
The collection offers a
historical analysis of labour practices, environmental
impacts, the effects of advertising and promotion, and
deals thoroughly with transnational corporations. The
authors show that corporations have little incentive or
inclination to act in the public interest: whether it be
pharmaceutical companies ignoring research into diseases
affecting the poor, or maquiladoras flouting
environmental standards and summarily firing employees
who try to organize unions or “threaten productivity” by
getting pregnant.
Health and economic
situations are examined in Russia, Haiti, Peru, Cuba, El
Salvador and India. A chapter on manufacturing practices
and marketing of infant formula, cigarettes, pesticides,
pharmaceuticals and weapons will be of special interest
to environmentalists.
With a wealth of
information rarely found in one place, both books should
be interesting for specialists such as health
professionals, economists, development workers and
anthropologists. At the same time they are quite
accessible for a general audience, full of anecdotes and
examples. Dying for Growth, in particular, is an
excellent introduction to trade and development issues,
with specific country reports, contacts for activists
and a dictionary of economic terms.
Despite the impressive
strengths of both works, a few deficiencies need to be
addressed. I found the lack of blame attributed to Third
World leadership and citizens grating and almost
paternalistic. There is a mention of kleptocracies such
as Mobutu’s in Zaire but little analysis of the possible
impact of this corruption on health and education of the
poor. But union irresponsibility, poor government
decisions, arms purchases and culture also play a role.
And surprisingly, there is little in either book on
non-governmental organizations.
Both books largely overlook
the impact of war and massive military budgets on
people’s health, despite the mass movement of refugees
and outbreaks of cholera and other infectious disease
and famine in many countries. A chapter on the impact of
sanctions, which killed a million and a half people in
the last decade in Iraq, might also have been
appropriate. Personal
edge The books also had a personal
impact on me as a family physician.
The stories showing how
families on the edge can be driven over it by one
medical event in a privatized medical system are
heartbreaking. But I was also forced to reassess my
views of my own patients. Farmer’s team and their
enduring empathy are a shining example at a time when
few physicians seem to really care any more for the
marginalized of society – those who cause us the major
headaches with incessant paper work, chronic
unreliability in terms of appointments and
non-compliance with treatment regimens.
Doctors must take a broader
view of health or risk irrelevance. As Farmer says,
“Take physicians. We study vitamin deficiencies, but not
land reform. We elaborate protocols to improve standards
of care, but rarely discuss equity of access to
excellent care and almost never discuss privatization
and ‘user fees’. … We learn about patho-physiology, but
never the embodiment of the social forces that set in
motion a series of events.” Neil Arya
is a family physician, adjunct professor in
Environmental Studies at the University of Waterloo, and
former president of Physicians for Global
Survival. |